Living with Parkinson’s Disease: What Caregivers Need to Know

Schedule a Tour
Blog Hero
A caregiver clasps the hand of an older adult with Parkinson's while reassuring them

Parkinson’s disease is complex. It often begins with small shifts in a person’s movement and everyday routine. As it develops, a person’s needs change, and eventually, they may need professional care. With conditions like Parkinson’s disease, staying informed is key.

Parkinson’s leads to small everyday challenges that tend to worsen over time. In the earlier stages, symptoms are mild. However, this is a progressive condition, so these symptoms may reach a point where your loved one needs more care than you can provide at home.

What Is Parkinson’s Disease?

Parkinson’s disease is a progressive neurodegenerative disorder that primarily affects movement. However, its impact extends far beyond physical symptoms. 

The condition occurs when nerve cells in the brain that produce dopamine deteriorate. Dopamine is responsible for transmitting chemical signals between the muscles and the brain.

Parkinson’s Disease: The Common Symptoms

The most common Parkinson’s symptoms include:

  • Tremors
  • Muscle stiffness
  • Slow movements
  • Balance problems
  • Speech challenges

People with Parkinson’s can also experience cognitive changes that impact their sense of smell, sleep patterns, memory, and thinking. As the condition progresses further, these symptoms tend to worsen.

How Parkinson’s Changes Caregiving Needs

Parkinson’s is a progressive disease. Caregiving responsibilities will naturally evolve as your loved one’s condition changes.

Early-Stage Parkinson’s Disease

In the beginning stages, symptoms are typically mild and may come and go. Your loved one might experience slight tremors, some stiffness, or minor changes in walking. These symptoms often don’t significantly interfere with daily assistance needs. 

During this time, focus on encouraging independence while providing emotional support. 

Intermediate-Stage Parkinson’s Disease

As the disease advances, you’ll notice more pronounced symptoms. This stage often brings increased medication needs and physical therapy. At this middle stage, creating care plans and exploring your support options provides peace of mind for everyone involved.

Advanced-Stage Parkinson’s Disease

Later stages of Parkinson’s disease bring more significant challenges. Your loved one may struggle with communication or need comprehensive everyday assistance. Falls become a greater concern, so home modifications become essential for someone with Parkinson’s. 

At this point, your loved one will likely need around-the-clock care, and a move to senior living can help preserve your loved one’s quality of life.

Common Challenges Caregivers Face

Every caregiver faces unique obstacles when Parkinson’s disease is involved. Recognizing and addressing these challenges helps you navigate the caregiving journey more effectively.

Physical & Emotional Strain

The physical aspects can strain your body over time, especially if you’re not accustomed to caregiving. Helping a person with mobility, transfers, and personal care takes time and energy. So, make sure to focus on your own well-being as well.

Work obligations, family commitments, and personal needs don’t disappear when caregiving responsibilities grow. Finding this balance without sacrificing your own well-being is one of the most challenging aspects of long-term care.

Communication Barriers

As Parkinson’s progresses, speech and cognitive issues can make communication difficult. Speaking slowly and clearly, maintaining eye contact, and allowing extra time for responses can help bridge communication gaps. 

Sometimes, finding alternative ways to communicate becomes necessary. Visual aids like written notes, cards with illustrations to depict needs, or clear gestures help significantly here.

Daily Living Assistance

Helping with tasks like dressing, bathing, and eating can be physically demanding. Fortunately, specialized tools and adaptive equipment can ease these challenges. It also helps to look into professional support to help your loved one every day.

Caring for Yourself as a Caregiver

It’s easy to forget your own needs while caring for someone else. Regular exercise, healthy meals, and downtime are crucial. Support groups also offer emotional relief and practical tips from those in similar shoes.

Tips for Providing Effective Care

Providing effective care for someone with Parkinson’s disease involves several steps. You’ll need to make some adjustments to your routine, learn more about the condition, and begin thinking about professional support.

It helps to:

  • Establish a consistent daily schedule
  • Remove tripping hazards to create a safer home environment
  • Encourage physical therapy and wellness activities to maintain mobility and strength
  • Educate yourself about Parkinson’s through reliable resources
  • Celebrate small victories to maintain positivity
  • Join caregiver support groups for shared advice and encouragement

If you ever feel overwhelmed, don’t try to push through it. You have options—like professional short-term stays—that can help both yourself and your loved one.

An older adult with Parkinson's disease sits in front of a sunlit window while an out-of-frame caregiver touches their hand to support them

How Senior Living Communities Can Help

Sometimes, your loved one may need more care than you can provide at home. That’s entirely natural, and you’re not alone. Senior living is a compassionate way to preserve your loved one’s dignity, self-respect, and quality of life.

Specialized Care & Support

Senior living communities with Parkinson’s care programs provide 24/7 professional oversight. The on-site caregivers are trained in the unique needs this condition creates. 

The community team can offer services that include proper medication timing and management, an experienced understanding of symptom fluctuations, and expertise in mobility assistance.

Social Engagement

Many senior communities offer physical therapy services right on-site. Your loved one can get the care they need without leaving the comfort of their community. They can enjoy opportunities to nurture close bonds with the community team and their neighbors.

With care services and experienced professionals directly in the community, caring for residents is easier than ever. With a mix of exercise programs, nutritious culinary experiences, and on-site caregivers, senior living can help your loved one prioritize wellness every day.

Safe & Comfortable Environment

Transitioning to a senior living community can be a difficult decision, but it’s a valuable choice. It doesn’t just support your loved one, either. Your entire family gains peace of mind knowing your loved one can live in a safe, comfortable environment.

Your Role as a Caregiver Makes a Difference

Providing excellent care doesn’t mean doing everything yourself. Seeking help from professionals, family members, or community resources demonstrates wisdom and strength, not weakness. And when you need support, our team at Kingston Residence of Vermillion can help.

We understand the complexities of Parkinson’s care and the dedication family caregivers bring to supporting their loved ones. Our team is here to provide information, support, and specialized care options when you need them. 

Schedule a visit to learn more about how we can support you and your loved one on this journey together.

Where Life Thrives

Assisted Living

Discover a vibrant and supportive lifestyle designed for people seeking assistance with daily activities. We help empower people to flourish and enjoy a dynamic, enriching life.

Assisted Living

Skilled Nursing

Experience freedom and support at the same time. Live a life filled with purpose and connections while receiving the care needed to make the most of every day.

Skilled Nursing

Memory Care

Find comprehensive, individualized support designed specifically for people affected by cognitive challenges caused by Alzheimer’s and other forms of dementia.

Memory Care

Short-Term Stays

Short-term respite care can offer caregivers flexibility and peace of mind while their loved ones enjoy our quality care and experiences.

Short-Term Stays

Our Reviews

“A true loving and caring team that provided incredible care for our family.”

Find Our Senior Living Community

Contact Information

24 hour availability

Our Address

  • 6010 W Lake Rd.
  • Vermilion, OH 44089

Conveniently Located in Vermilion

Located mere blocks from the idyllic shores of Lake Erie, Kingston of Vermilion is a vibrant community where memory care, rehabilitation and long term care residents can thrive.

Get In Touch

instagram facebook facebook2 pinterest twitter google-plus google linkedin2 yelp youtube phone location calendar share2 link star-full star star-half chevron-right chevron-left chevron-down chevron-up envelope fax